{"id":710,"date":"2025-10-13T08:33:38","date_gmt":"2025-10-13T08:33:38","guid":{"rendered":"https:\/\/www.curedm.co.uk\/?page_id=710"},"modified":"2026-05-28T07:35:24","modified_gmt":"2026-05-28T07:35:24","slug":"research","status":"publish","type":"page","link":"https:\/\/www.curedm.co.uk\/?page_id=710","title":{"rendered":"Research"},"content":{"rendered":"\n<h4 class=\"wp-block-heading has-text-align-center alignwide has-accent-4-background-color has-background has-large-font-size\">Research is a big part of what we&nbsp;are involved in.&nbsp;Scientific knowledge&nbsp;is the&nbsp;stepping stone to understanding and treating Myotonic Dystrophy and improving Quality of Life for all affected..<\/h4>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Cure DM facilitate research in many ways:<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">* We attend conferences, advocate for&nbsp;our community and&nbsp;ensure the&nbsp;myotonic dystrophy patient and caregiver is represented.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">*&nbsp;&nbsp;We ensure any and all information we share is accurate and correct &#8211; and up to date!<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">* We are on multiple panels and collaborate to publish documents and&nbsp;disseminate info.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">* We directly support and fund researchers and clinicians.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">* We take the&nbsp;patients perspective to those working on studies and researching this complex condition. We remind them that we are real people, and advocate on behalf of the DM community at every opportunity.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">It is vital we&nbsp;continue&nbsp;to learn&nbsp;about Myotonic Dystrophy, particularly&nbsp;congenital and early childhood&nbsp;onset, which is often overlooked. <\/p>\n\n\n\n<div class=\"wp-block-group alignfull has-border-color has-custom-colour-1-border-color has-background has-global-padding is-layout-constrained wp-container-core-group-is-layout-ae289127 wp-block-group-is-layout-constrained\" style=\"border-style:solid;border-width:14px;background:linear-gradient(99deg,#B1C5A4 0%,#F9F9F9 100%);margin-top:0;margin-bottom:0;padding-top:var(--wp--preset--spacing--50);padding-right:var(--wp--preset--spacing--50);padding-bottom:var(--wp--preset--spacing--50);padding-left:var(--wp--preset--spacing--50)\">\n<div class=\"wp-block-columns alignwide is-layout-flex wp-container-core-columns-is-layout-d525a65d wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-container-core-column-is-layout-da384c3e wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading has-text-align-center alignwide\" id=\"we-re-a-studio-in-berlin-with-an-international-practice-in-architecture-urban-planning-and-interior-design-we-believe-in-sharing-knowledge-and-promoting-dialogue-to-increase-the-creative-potential-of-collaboration\" style=\"font-size:clamp(27.894px, 1.743rem + ((1vw - 3.2px) * 2.094), 48px);line-height:1.1\"><strong><a href=\"https:\/\/www.curedm.co.uk\/?page_id=698\" data-type=\"page\" data-id=\"698\"><mark style=\"background-color:rgba(0, 0, 0, 0);color:#d8613c\" class=\"has-inline-color\"><span style=\"text-decoration: underline;\">CureDM Charity research<\/span><\/mark><\/a><\/strong><\/h2>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">There are a number of ways for the DM patient community to get involved with research, via online surveys.<\/p>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\"> From information you share, CureDM builds nd presents posters at worldwide conferences. This helps to raise awareness and share real world data on how DM affects us.<\/p>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\"><strong><mark style=\"background-color:rgba(0, 0, 0, 0)\" class=\"has-inline-color has-custom-colour-1-color\"><a href=\"https:\/\/www.curedm.co.uk\/?page_id=698\" data-type=\"page\" data-id=\"698\">Click here to learn more and to get involved.<\/a><\/mark><\/strong><\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-container-core-column-is-layout-da384c3e wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading has-text-align-center alignwide\" id=\"we-re-a-studio-in-berlin-with-an-international-practice-in-architecture-urban-planning-and-interior-design-we-believe-in-sharing-knowledge-and-promoting-dialogue-to-increase-the-creative-potential-of-collaboration\" style=\"font-size:clamp(27.894px, 1.743rem + ((1vw - 3.2px) * 2.094), 48px);line-height:1.1\"><strong><a href=\"https:\/\/www.curedm.co.uk\/?page_id=741\" data-type=\"page\" data-id=\"741\">Horizon Scan<\/a> <\/strong><\/h2>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">CureDM keep an ear close to the ground and have developed this medication and research snapshot &#8211; a horizon scan \u2013 which can be accessed on the following page.<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-full is-resized\"><a href=\"https:\/\/www.curedm.co.uk\/?page_id=741\"><img loading=\"lazy\" decoding=\"async\" width=\"345\" height=\"265\" src=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2025\/10\/dated-title.jpeg\" alt=\"\" class=\"wp-image-737\" style=\"width:233px;height:auto\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2025\/10\/dated-title.jpeg 345w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2025\/10\/dated-title-300x230.jpeg 300w\" sizes=\"auto, (max-width: 345px) 100vw, 345px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-container-core-column-is-layout-da384c3e wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading has-text-align-center alignwide\" id=\"we-re-a-studio-in-berlin-with-an-international-practice-in-architecture-urban-planning-and-interior-design-we-believe-in-sharing-knowledge-and-promoting-dialogue-to-increase-the-creative-potential-of-collaboration\" style=\"font-size:clamp(27.894px, 1.743rem + ((1vw - 3.2px) * 2.094), 48px);line-height:1.1\"><a href=\"https:\/\/www.curedm.co.uk\/?page_id=1399\" data-type=\"page\" data-id=\"1399\"><mark style=\"background-color:rgba(0, 0, 0, 0);color:#d8613c\" class=\"has-inline-color\"><strong><span style=\"text-decoration: underline;\">Conferences<\/span><\/strong><\/mark><\/a><\/h2>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">CureDM are proud to attend conferences all over the world, raising the voice of the UK DM patient and sharing our expertise with the scientific community.<\/p>\n\n\n\n<figure class=\"wp-block-image aligncenter size-large is-resized\"><a href=\"https:\/\/www.curedm.co.uk\/?page_id=1399\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"http:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/05\/NN-at-poster-IDMC-2026-768x1024.jpg\" alt=\"\" class=\"wp-image-1385\" style=\"width:170px;height:auto\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/05\/NN-at-poster-IDMC-2026-768x1024.jpg 768w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/05\/NN-at-poster-IDMC-2026-225x300.jpg 225w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/05\/NN-at-poster-IDMC-2026-1152x1536.jpg 1152w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/05\/NN-at-poster-IDMC-2026.jpg 1536w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/a><\/figure>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-columns alignwide is-layout-flex wp-container-core-columns-is-layout-d525a65d wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-container-core-column-is-layout-da384c3e wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading has-text-align-center alignwide\" id=\"we-re-a-studio-in-berlin-with-an-international-practice-in-architecture-urban-planning-and-interior-design-we-believe-in-sharing-knowledge-and-promoting-dialogue-to-increase-the-creative-potential-of-collaboration\" style=\"font-size:clamp(27.894px, 1.743rem + ((1vw - 3.2px) * 2.094), 48px);line-height:1.1\"><\/h2>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-container-core-column-is-layout-da384c3e wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading has-text-align-center alignwide\" id=\"we-re-a-studio-in-berlin-with-an-international-practice-in-architecture-urban-planning-and-interior-design-we-believe-in-sharing-knowledge-and-promoting-dialogue-to-increase-the-creative-potential-of-collaboration\" style=\"font-size:clamp(27.894px, 1.743rem + ((1vw - 3.2px) * 2.094), 48px);line-height:1.1\"><strong><a href=\"https:\/\/www.curedm.co.uk\/?page_id=1032\" data-type=\"page\" data-id=\"1032\"><mark style=\"background-color:rgba(0, 0, 0, 0);color:#d8613c\" class=\"has-inline-color\"><span style=\"text-decoration: underline;\">CureDM Focus Group<\/span><\/mark><\/a><\/strong><\/h2>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">Our Charity Focus group is made up of individuals with lived-experience, who can help shape the future of the Charity and Research, ensuring a wide range of stakeholders are involved at all stages. Click here for more details on how we can support you, or how you can get involved with the group.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><a href=\"https:\/\/www.curedm.co.uk\/?page_id=1032\"><img loading=\"lazy\" decoding=\"async\" width=\"768\" height=\"1024\" src=\"http:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/03\/cover-image-2-768x1024.jpg\" alt=\"\" class=\"wp-image-1139\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/03\/cover-image-2-768x1024.jpg 768w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/03\/cover-image-2-225x300.jpg 225w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/03\/cover-image-2.jpg 1024w\" sizes=\"auto, (max-width: 768px) 100vw, 768px\" \/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-container-core-column-is-layout-da384c3e wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading has-text-align-center alignwide\" id=\"we-re-a-studio-in-berlin-with-an-international-practice-in-architecture-urban-planning-and-interior-design-we-believe-in-sharing-knowledge-and-promoting-dialogue-to-increase-the-creative-potential-of-collaboration\" style=\"font-size:clamp(27.894px, 1.743rem + ((1vw - 3.2px) * 2.094), 48px);line-height:1.1\"><strong>UK DM Patient Registry<\/strong><\/h2>\n\n\n\n<figure class=\"wp-block-image aligncenter size-full is-resized\"><a href=\"https:\/\/dm-registry.org.uk\/register-now\" target=\"_blank\" rel=\" noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"541\" height=\"167\" src=\"http:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/04\/UK-DM-Patient-Registry-Logo.jpg\" alt=\"\" class=\"wp-image-1261\" style=\"width:225px;height:auto\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/04\/UK-DM-Patient-Registry-Logo.jpg 541w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/04\/UK-DM-Patient-Registry-Logo-300x93.jpg 300w\" sizes=\"auto, (max-width: 541px) 100vw, 541px\" \/><\/a><\/figure>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\" id=\"we-re-a-studio-in-berlin-with-an-international-practice-in-architecture-urban-planning-and-interior-design-we-believe-in-sharing-knowledge-and-promoting-dialogue-to-increase-the-creative-potential-of-collaboration\">With your help, CureDM co-funds the UK DM Patient registry. We understand the importance of having accurate patient data, and how this can improve day-to-day care for our community, as well as support upcoming potential trials, treatments and therapies.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"576\" src=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/04\/steering-committee-2024-1024x576.jpg\" alt=\"\" class=\"wp-image-1264\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/04\/steering-committee-2024-1024x576.jpg 1024w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/04\/steering-committee-2024-300x169.jpg 300w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/04\/steering-committee-2024-768x432.jpg 768w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/04\/steering-committee-2024-1536x864.jpg 1536w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/04\/steering-committee-2024.jpg 1920w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-columns alignwide is-layout-flex wp-container-core-columns-is-layout-d525a65d wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-container-core-column-is-layout-da384c3e wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading has-text-align-center alignwide\" id=\"we-re-a-studio-in-berlin-with-an-international-practice-in-architecture-urban-planning-and-interior-design-we-believe-in-sharing-knowledge-and-promoting-dialogue-to-increase-the-creative-potential-of-collaboration\" style=\"font-size:clamp(27.894px, 1.743rem + ((1vw - 3.2px) * 2.094), 48px);line-height:1.1\"><strong><span style=\"text-decoration: underline;\">CureDM funded projects<\/span><\/strong><\/h2>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">With your help, CureDM co-funds the UK DM Patient registry. We have been able to pay for clinicians and researchers to attend vital conferences, enabling them to learn more about DM and to and present their work, and have supported many projects working on DM in the UK. <\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-container-core-column-is-layout-da384c3e wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading has-text-align-center alignwide\" id=\"we-re-a-studio-in-berlin-with-an-international-practice-in-architecture-urban-planning-and-interior-design-we-believe-in-sharing-knowledge-and-promoting-dialogue-to-increase-the-creative-potential-of-collaboration\" style=\"font-size:clamp(27.894px, 1.743rem + ((1vw - 3.2px) * 2.094), 48px);line-height:1.1\"><strong><span style=\"text-decoration: underline;\">Current DM <a href=\"https:\/\/www.curedm.co.uk\/?page_id=1229\" data-type=\"page\" data-id=\"1229\">Research<\/a><\/span><\/strong><\/h2>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">Cure DM is pleased to work closely with pharmaceutical companies working on DM research, bringing up-to-date information to the community, straight from the horses mouth. Everything we publish here has come direct from the company or has been double checked with them to ensure accuracy.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><a href=\"https:\/\/www.curedm.co.uk\/?page_id=1229\"><img decoding=\"async\" src=\"http:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/04\/Combined-CureDM-banner-2025-5a-e1775398007423.jpg\" alt=\"\"\/><\/a><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-container-core-column-is-layout-da384c3e wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading has-text-align-center alignwide\" id=\"we-re-a-studio-in-berlin-with-an-international-practice-in-architecture-urban-planning-and-interior-design-we-believe-in-sharing-knowledge-and-promoting-dialogue-to-increase-the-creative-potential-of-collaboration\" style=\"font-size:clamp(27.894px, 1.743rem + ((1vw - 3.2px) * 2.094), 48px);line-height:1.1\"><strong><span style=\"text-decoration: underline;\">Palliative and End of Life<\/span><\/strong><\/h2>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\">CureDM proudly collaborated with UK specialists to produce the UK Palliative and End of Life Care guidleines for the UK. <\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Research is a big part of what we&nbsp;are involved in.&nbsp;Scientific knowledge&nbsp;is the&nbsp;stepping stone to understanding and treating Myotonic Dystrophy and improving Quality of Life for all affected.. Cure DM facilitate research in many ways: * We attend conferences, advocate for&nbsp;our community and&nbsp;ensure the&nbsp;myotonic dystrophy patient and caregiver is represented. *&nbsp;&nbsp;We ensure any and all information [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-710","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages\/710","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=710"}],"version-history":[{"count":24,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages\/710\/revisions"}],"predecessor-version":[{"id":1401,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages\/710\/revisions\/1401"}],"wp:attachment":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=710"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}