{"id":785,"date":"2025-10-14T09:21:48","date_gmt":"2025-10-14T09:21:48","guid":{"rendered":"https:\/\/www.curedm.co.uk\/?page_id=785"},"modified":"2026-07-18T22:20:03","modified_gmt":"2026-07-18T22:20:03","slug":"day-to-day-living-and-support","status":"publish","type":"page","link":"https:\/\/www.curedm.co.uk\/?page_id=785","title":{"rendered":"Day to day living and support."},"content":{"rendered":"\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"has-custom-colour-1-background-color has-background wp-block-paragraph\">Pen Picture template &#8211; a short, personalised document all about YOU. This is not just a medical document, this helps the person caring for you to get to know the individual person, as well as the complex condition. Over the years we have used this through school, college, adult skills, in hospital and in medical appointments. We print this off an have it as the first thing that is seen BEFORE the medical documents. <strong>Putting the person first!<\/strong><\/p>\n\n\n\n<div class=\"wp-block-file\"><a id=\"wp-block-file--media-76683f19-08ad-457b-b692-c98498f13d3b\" href=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/Pen-Picture-form-blank.docx\">Dowload your editable Pen Picture form here<\/a><a href=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/Pen-Picture-form-blank.docx\" class=\"wp-block-file__button wp-element-button\" download aria-describedby=\"wp-block-file--media-76683f19-08ad-457b-b692-c98498f13d3b\">Download<\/a><\/div>\n\n\n\n<div data-wp-interactive=\"core\/file\" class=\"wp-block-file\"><object data-wp-bind--hidden=\"!state.hasPdfPreview\" hidden class=\"wp-block-file__embed\" data=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/Pen-Picture-Miles-example.pdf\" type=\"application\/pdf\" style=\"width:100%;height:200px\" aria-label=\"Embed of View the example Pen Picture for Miles.\"><\/object><a id=\"wp-block-file--media-91b72cd6-05aa-4cff-a9e6-bfaa2b331035\" href=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/Pen-Picture-Miles-example.pdf\">View the example Pen Picture for Miles<\/a><a href=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/Pen-Picture-Miles-example.pdf\" class=\"wp-block-file__button wp-element-button\" download aria-describedby=\"wp-block-file--media-91b72cd6-05aa-4cff-a9e6-bfaa2b331035\">Download<\/a><\/div>\n\n\n\n<p class=\"has-text-align-center wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<h6 class=\"wp-block-heading has-accent-4-background-color has-background\"><a href=\"https:\/\/www.musculardystrophyuk.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">Muscular Dystrophy UK<\/a>&nbsp;(MDUK) produced this neuromuscular care plan which is extremely useful way to keep all your infomration in one place. Fill it out and update regularly as your condition changes, and keep a copy in your emergency file so it is always to hand.<\/h6>\n\n\n\n<figure class=\"wp-block-image\"><a href=\"http:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/Muscular-Dystrophy-UK-Care-plan.pdf\" target=\"_blank\" rel=\"noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"602\" height=\"114\" src=\"http:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/MDUK-care-plan-image.png\" alt=\"\" class=\"wp-image-274\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/MDUK-care-plan-image.png 602w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/MDUK-care-plan-image-300x57.png 300w\" sizes=\"auto, (max-width: 602px) 100vw, 602px\" \/><\/a><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<h6 class=\"wp-block-heading has-accent-4-background-color has-background\"><a href=\"https:\/\/www.musculardystrophyuk.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">Muscular Dystrophy UK<\/a>&nbsp;have published this great guide to support with home adaptions. We advise you to read it, identify what you need and what you are entitled to, and share it with your Occupational Therapist (OT).OT&nbsp;may not fully&nbsp;understand Myotonic Dystrophy, or how support needs may increase iover time, It is important to get this information to them and enable them to FUTURE-PROOF your home.<\/h6>\n\n\n\n<figure class=\"wp-block-image\"><a href=\"http:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/MDUK-adaptions-manual.pdf\" target=\"_blank\" rel=\"noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"602\" height=\"540\" src=\"http:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/MDUK-adaptions.png\" alt=\"\" class=\"wp-image-255\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/MDUK-adaptions.png 602w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/MDUK-adaptions-300x269.png 300w\" sizes=\"auto, (max-width: 602px) 100vw, 602px\" \/><\/a><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n\n\n\n<h6 class=\"wp-block-heading has-accent-4-background-color has-background\"><a href=\"http:\/\/www.musculardystrophyuk.org\/\" target=\"_blank\" rel=\"noreferrer noopener\">MDUK<\/a>&nbsp;published guide to support with Personal Independence Payment (PIP) applications.<\/h6>\n\n\n\n<figure class=\"wp-block-image\"><a href=\"http:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/Personal-Independence-Payment-guide.pdf\" target=\"_blank\" rel=\"noreferrer noopener\"><img loading=\"lazy\" decoding=\"async\" width=\"602\" height=\"293\" src=\"http:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/PIP-image.png\" alt=\"\" class=\"wp-image-275\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/PIP-image.png 602w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/PIP-image-300x146.png 300w\" sizes=\"auto, (max-width: 602px) 100vw, 602px\" \/><\/a><\/figure>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Pen Picture template &#8211; a short, personalised document all about YOU. This is not just a medical document, this helps the person caring for you to get to know the individual person, as well as the complex condition. Over the years we have used this through school, college, adult skills, in hospital and in medical [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":224,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-785","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages\/785","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=785"}],"version-history":[{"count":4,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages\/785\/revisions"}],"predecessor-version":[{"id":1626,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages\/785\/revisions\/1626"}],"up":[{"embeddable":true,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages\/224"}],"wp:attachment":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=785"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}