{"id":886,"date":"2026-09-01T10:45:29","date_gmt":"2026-09-01T10:45:29","guid":{"rendered":"https:\/\/www.curedm.co.uk\/?page_id=886"},"modified":"2026-09-01T10:46:47","modified_gmt":"2026-09-01T10:46:47","slug":"my-dm-support-plan","status":"publish","type":"page","link":"https:\/\/www.curedm.co.uk\/?page_id=886","title":{"rendered":"My DM Support Plan"},"content":{"rendered":"\n<div class=\"wp-block-group alignfull has-accent-2-background-color has-background has-global-padding is-layout-constrained wp-container-core-group-is-layout-73128380 wp-block-group-is-layout-constrained\" style=\"margin-top:0;margin-bottom:0;padding-top:var(--wp--preset--spacing--50);padding-right:var(--wp--preset--spacing--50);padding-bottom:var(--wp--preset--spacing--50);padding-left:var(--wp--preset--spacing--50)\">\n<div class=\"wp-block-columns alignwide is-layout-flex wp-container-core-columns-is-layout-3a88641f wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<figure class=\"wp-block-image size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"683\" height=\"1024\" src=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2025\/11\/52cf67f7-b194-4fe4-8def-c3102885fe29-1-683x1024.jpg\" alt=\"\" class=\"wp-image-893\" style=\"aspect-ratio:0.6673899085615604;width:368px;height:auto\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2025\/11\/52cf67f7-b194-4fe4-8def-c3102885fe29-1-683x1024.jpg 683w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2025\/11\/52cf67f7-b194-4fe4-8def-c3102885fe29-1-200x300.jpg 200w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2025\/11\/52cf67f7-b194-4fe4-8def-c3102885fe29-1-768x1152.jpg 768w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2025\/11\/52cf67f7-b194-4fe4-8def-c3102885fe29-1.jpg 1024w\" sizes=\"auto, (max-width: 683px) 100vw, 683px\" \/><\/figure>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:60%\">\n<p class=\"has-text-align-center has-heading-font-family has-x-large-font-size wp-block-paragraph\" style=\"line-height:1.2\">Welcome to &#8216;My DM Support Plan&#8217; page <\/p>\n\n\n\n<p class=\"has-text-align-center has-heading-font-family has-x-large-font-size wp-block-paragraph\" style=\"line-height:1.2\">Here you will find information and downloadable templates to help you create your own, individual to you, Myotonic Dystrophy Care and support folder! <\/p>\n\n\n\n<p class=\"has-text-align-center has-heading-font-family has-x-large-font-size wp-block-paragraph\" style=\"line-height:1.2\">Please reach out if you have any questions.<\/p>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-group alignfull has-base-background-color has-background has-global-padding is-layout-constrained wp-container-core-group-is-layout-36f65c2d wp-block-group-is-layout-constrained\" style=\"margin-top:0;margin-bottom:0;padding-top:var(--wp--preset--spacing--50);padding-right:var(--wp--preset--spacing--50);padding-bottom:var(--wp--preset--spacing--50);padding-left:var(--wp--preset--spacing--50)\">\n<div class=\"wp-block-columns alignwide is-layout-flex wp-container-core-columns-is-layout-ef10d34a wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\" style=\"flex-basis:40%\">\n<p class=\"has-text-align-center has-custom-colour-1-background-color has-background has-large-font-size wp-block-paragraph\"><span style=\"text-decoration: underline;\">Check list for your folder:<\/span><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>An A4 size, sealable folder<\/li>\n\n\n\n<li>A pen<\/li>\n\n\n\n<li>Plain paper for notes<\/li>\n\n\n\n<li>CureDM downloads<\/li>\n\n\n\n<li>Your NHS letters\/appointment reports<\/li>\n\n\n\n<li>Care guidelines<\/li>\n<\/ul>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-container-core-column-is-layout-0c22cdd7 wp-block-column-is-layout-flow\" style=\"flex-basis:60%\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-3afcaa04 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"wp-container-content-9cfa9a5a wp-block-paragraph\">Having an up-to-date and ready to go DM support plan folder,especially when you or a loved one have a complex and variable condition such as Myotonic Dystrophy, is really important. <\/p>\n\n\n\n<p class=\"wp-container-content-9cfa9a5a wp-block-paragraph\">People living with rare diseases will often find themselves educating health care professionals, simply because it is still very unknown. Having easy to read, personalised, and up to date information at your finger tips can really help you to advocate for yourself, and can be vital in all situations. <\/p>\n\n\n\n<p class=\"wp-container-content-9cfa9a5a wp-block-paragraph\">Keep the folder in an accessible place, making sure it is easy to access in an emergency. <\/p>\n<\/div>\n\n\n\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<p class=\"wp-block-paragraph\">Myotonic Dystrophy is described as &#8216;the most complex condition known to medical science&#8217; &#8211; simply because it is so variable and unpredictable!  No two people are affected the same so having a personal folder of information can make it easier for both you, and the clinical professionals, when in routine appointments or emergency situations, not to mention school meetings, GP appointments, annual reviews, local authority meetings, change of care meetings&#8230;.. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This will be your plan, make them as detailed as you want\/need them to be, and remember, YOU are the expert in your own \/ your loved ones condition. <\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n<div class=\"wp-block-cover alignfull is-light has-parallax\" style=\"padding-top:var(--wp--preset--spacing--50);padding-right:var(--wp--preset--spacing--50);padding-bottom:var(--wp--preset--spacing--50);padding-left:var(--wp--preset--spacing--50);min-height:100vh;aspect-ratio:unset;\"><div class=\"wp-block-cover__image-background wp-image-848 size-full has-parallax\" style=\"background-position:50% 50%;background-image:url(http:\/\/www.curedm.co.uk\/wp-content\/uploads\/2025\/11\/2025-blog-image.jpg)\"><\/div><span aria-hidden=\"true\" class=\"wp-block-cover__background has-base-background-color has-background-dim-0 has-background-dim\"><\/span><div class=\"wp-block-cover__inner-container has-global-padding is-layout-constrained wp-container-core-cover-is-layout-0979e81e wp-block-cover-is-layout-constrained\">\n<h2 class=\"wp-block-heading has-text-align-center alignwide has-custom-colour-1-color has-text-color has-link-color has-xx-large-font-size wp-elements-1\"><strong>Why not check out CureDM Connect &#8211; our monthly blog <a href=\"https:\/\/www.curedm.co.uk\/wp-admin\/post.php?post=811&amp;action=edit\">HERE!<\/a><\/strong><\/h2>\n<\/div><\/div>\n\n\n\n<div class=\"wp-block-group alignfull has-base-2-background-color has-background has-global-padding is-layout-constrained wp-container-core-group-is-layout-af3670d6 wp-block-group-is-layout-constrained\" style=\"margin-top:0;margin-bottom:0;padding-top:var(--wp--preset--spacing--60);padding-right:var(--wp--preset--spacing--60);padding-bottom:var(--wp--preset--spacing--60);padding-left:var(--wp--preset--spacing--60)\">\n<div class=\"wp-block-group alignwide is-layout-flow wp-block-group-is-layout-flow\">\n<p class=\"has-text-align-center has-custom-colour-1-color has-text-color has-link-color has-large-font-size wp-elements-2 wp-block-paragraph\">We have collated a large selection of downloadable, editable, and printable documents for you to add to your own DM support plan folder. If you have any questions, please contact us and we will be happy to help.<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><a href=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/Pen-Picture-form-blank.docx\" data-type=\"attachment\" data-id=\"1624\" target=\"_blank\" rel=\"noreferrer noopener\">Pen Picture template<\/a>, with example copy of <a href=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/Pen-Picture-Miles-example.pdf\" data-type=\"attachment\" data-id=\"1623\" target=\"_blank\" rel=\"noreferrer noopener\">Miles&#8217; Pen Picture<\/a><\/li>\n\n\n\n<li>List of personal health care professionals and contact details: <a href=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/List-of-specialists-blank.docx\" data-type=\"attachment\" data-id=\"1628\" target=\"_blank\" rel=\"noreferrer noopener\">template<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2025\/11\/Camrare-picture-passport-.jpg\" data-type=\"attachment\" data-id=\"892\" target=\"_blank\" rel=\"noreferrer noopener\">CAMRARE patient passport<\/a> &#8211; lanyard version<\/li>\n\n\n\n<li><a href=\"https:\/\/www.curedm.co.uk\/?page_id=793\" data-type=\"page\" data-id=\"793\" target=\"_blank\" rel=\"noreferrer noopener\">Consensus based care recommendations for DM<\/a> (adult or child)<\/li>\n\n\n\n<li><a href=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/Anaesthetic-basic-guidelines-Cure-DM.pdf\" data-type=\"attachment\" data-id=\"231\" target=\"_blank\" rel=\"noreferrer noopener\">CureDM basic anaesthetic guidelines<\/a><\/li>\n\n\n\n<li><a href=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2024\/02\/Muscular-Dystrophy-UK-Care-plan.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">MDUK neuromuscular care plan template<\/a><\/li>\n\n\n\n<li>MDF: A guide to DM for school professionals<\/li>\n\n\n\n<li>International Myotonic Dystrophy Awareness Day poster <\/li>\n\n\n\n<li>Could it be Myotonic Dystrophy? poster<\/li>\n\n\n\n<li>Myotonic Dystrophy at a glance poster<\/li>\n\n\n\n<li>MDF clinic planner for notes<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">Things that you can also include:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Your genomics lab report &#8211; you can request this from your genetic counsellor or consultant. <\/li>\n\n\n\n<li>Copies of all recent clinic letters<\/li>\n\n\n\n<li>Copies of ECG&#8217;s and blood results so you always have your baselines to hand<\/li>\n\n\n\n<li>If you have a specific health conditions or learning disabilities you can add information about these too, e.g. Autism, ADHD, etc.<\/li>\n\n\n\n<li>Regularly review your support plan documents annually or sooner if you feel like the information needs to be updated.<\/li>\n<\/ul>\n<\/div>\n\n\n\n<figure class=\"wp-block-gallery has-nested-images columns-default is-cropped wp-block-gallery-1 is-layout-flex wp-block-gallery-is-layout-flex\">\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"654\" data-id=\"1497\" src=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/7140591c-d62f-4d32-8364-417b23dda246-1-1024x654.jpeg\" alt=\"\" class=\"wp-image-1497\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/7140591c-d62f-4d32-8364-417b23dda246-1-1024x654.jpeg 1024w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/7140591c-d62f-4d32-8364-417b23dda246-1-300x192.jpeg 300w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/7140591c-d62f-4d32-8364-417b23dda246-1-768x491.jpeg 768w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/7140591c-d62f-4d32-8364-417b23dda246-1-1536x981.jpeg 1536w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/7140591c-d62f-4d32-8364-417b23dda246-1.jpeg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"801\" data-id=\"1496\" src=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/553bd6ea-61f6-4c2f-a425-ecfa5ee06113-1024x801.jpeg\" alt=\"\" class=\"wp-image-1496\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/553bd6ea-61f6-4c2f-a425-ecfa5ee06113-1024x801.jpeg 1024w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/553bd6ea-61f6-4c2f-a425-ecfa5ee06113-300x235.jpeg 300w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/553bd6ea-61f6-4c2f-a425-ecfa5ee06113-768x600.jpeg 768w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/553bd6ea-61f6-4c2f-a425-ecfa5ee06113-1536x1201.jpeg 1536w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/553bd6ea-61f6-4c2f-a425-ecfa5ee06113.jpeg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<figure class=\"wp-block-image size-large\"><img loading=\"lazy\" decoding=\"async\" width=\"1024\" height=\"622\" data-id=\"1498\" src=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/58a50613-17a2-493a-9d54-3ffeeede56cc-1024x622.jpeg\" alt=\"\" class=\"wp-image-1498\" srcset=\"https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/58a50613-17a2-493a-9d54-3ffeeede56cc-1024x622.jpeg 1024w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/58a50613-17a2-493a-9d54-3ffeeede56cc-300x182.jpeg 300w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/58a50613-17a2-493a-9d54-3ffeeede56cc-768x466.jpeg 768w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/58a50613-17a2-493a-9d54-3ffeeede56cc-1536x932.jpeg 1536w, https:\/\/www.curedm.co.uk\/wp-content\/uploads\/2026\/07\/58a50613-17a2-493a-9d54-3ffeeede56cc.jpeg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n<\/figure>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Welcome to &#8216;My DM Support Plan&#8217; page Here you will find information and downloadable templates to help you create your own, individual to you, Myotonic Dystrophy Care and support folder! Please reach out if you have any questions. Check list for your folder: Having an up-to-date and ready to go DM support plan folder,especially when [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":543,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-886","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages\/886","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=886"}],"version-history":[{"count":16,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages\/886\/revisions"}],"predecessor-version":[{"id":1665,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages\/886\/revisions\/1665"}],"up":[{"embeddable":true,"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=\/wp\/v2\/pages\/543"}],"wp:attachment":[{"href":"https:\/\/www.curedm.co.uk\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=886"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}