Our aims are to preserve and protect good health among, and relive the needs of, people living with Myotonic Dystrophy, their families and carers, in particular but not exclusively by:
- providing information, help and support to such people and their families and carers;
- making financial donations to support organisations and individuals carrying out research into Myotonic Dystrophy, the useful results of which will be published for public benefit;
- raising awareness of Myotonic Dystrophy within the general public, medical and scientific communities.
CureDM supports the drive towards research, whilst helping families living with this life-changing condition. We do this by facilitating and supporting research, advocating for our community, bringing families together at events, supporting each other and providing information at face to face meetings and online.
Myotonic Dystrophy is a rare condition, with families often having no knowledge of the genetic disorder until a child is born with the congenital form. Therefore it is essential we do all we can to raise awareness of the condition, and our group.