‘Support’ is different for every individual, and comes in many shapes and sizes. From day to day living and signposting to specialist care, to improving quality of life and facilitating peer-support.
Cure DM supports the Myotonic Dystrophy community in a range of ways. Each heading below will lead to further information and more details.
Condition Guidelines
A library of specialist guides and support pages to help with the day to day management of Myotonic Dystrophy, support in emergency situations, and support with quality of life such as home adaptions and benefits.
Support Plan
We have collated a large selection of downloadable, editable, and printable documents for you to add to your own DM support plan folder
Click here to read more and download your own plan!
Peer Support
We understand how important it is to meet others living with similar experiences, in a safe and friendly environment. CureDM has a private, Charity moderated facebook group here.
Click the image to be taken to the page.
Social Media and Blog
We are also delighted to share a monthly blog to keep you up to date with news and events.
CureDM hosts a private peer-support facebook page for those in the UK living with Myotonic Dystrophy.
UK DM Patient Registry
With your help, CureDM co-funds the UK DM Patient registry. We understand the importance of having accurate patient data, and how this can improve day-to-day care for our community, as well as support upcoming potential trials, treatments and therapies.
MedicAlert
CureDM Charity is proud to partner with The MedicAlert Foundation to provide FREE Medical ID jewellery and FREE One-year membership to MedicAlert’s first responder service.
Real stories and experiences
Myotonic Dystrophy is the most variable condition known to science, so it is very difficult to predict how progression may affect us or our loved ones, This page is dedicated to YOUR stories and experiences, from diganosis to sharing tips on how to make the most of every day.
Miles Cubs
CureDM clebrate and bring together the UK CDM community by gifting hand-made, individualised ‘Miles Cubs’ to the children we support.
Learn more by clicking the photo.
