As a rare disease, we can often feel like there is nothing out there to help us with the ongoing issues we can face, this isn’t the case.Here we have collated care guidelines (from DM specialists worldwide) to help with day to day management of Myotonic Dystrophy, support in emergency situations, and support with quality of life such as home adaptions and benefits. If there is something you need extra advice or help with, please contact us and we will always do our best to help you, or direct you to someone who can.