Supporting families living with Myotonic Dystrophy, raising awareness and facilitating research.

We are currently building a brand new site – in the meantime please CLICK HERE to be taken to the current site or HERE to visit our FaceBook page.

Making a difference to people living with Myotonic Dystrophy.


Click the photo to learn about how we support the community – from guidelines and signposting to appropriate services, to sitting down with a cup of tea and having a chat when you need it.


Click below to learn about all the ways CureDM raise awareness of Myotonic Dystrophy, locally, regionally and worldwide. Including International Myotonic Dystrophy Awareness Day, advocating for our community, and sharing information.


Learn about current research into Myotonic Dystrophy, and how CureDM helps to facilitate advancements. Including scientific events we attend and present at, current clinical trial and study updates, and a link to the CureDM Medication Snapshot .

Get Involved

Click the photo to learn about all the different ways you can get involved with CureDM. From fundraising, taking part in a sponsored event, joining our peer-support groups to sharing information with your doctors. There are so many ways you can support the Charity.


See upcoming events and peer support activities, and see what we have been up to in the past. From our annual ‘DM Families Day’ event in July each year, to online peer-support activities and community meet-ups around the country.


There are so many ways you can support our work – from one off donations, donating whilst you shop, signing up for gift aid, to leaving a legacy or purchasing our awesome merchandise. Click the photo to learn more.