The Myotonic Dystrophy Foundation have published these excellent resources’ we encourage you to share with your medical professionals and within your community. Developed by 66 international clinicians (including UK experts), all experienced in DM1 patient care.
Full toolkit for Myotonic Dystrophy. This is a detailed and comprenhensive guide to all things DM. You can contact the MDF for a hard copy.
Adults living with Myotonic Dystrophy Type 1: Full document.
Adults living with Myotonic Dystrophy Type 1: 4-page Quick Reference Guide. An easy to read 4-page document of the main points to consider. Easy to print and keep in your medical file.
Adults living with Myotonic Dystrophy Type 2: Full document.
Adults living with Myotonic Dystrophy Type 2: 4-page Quick Reference Guide. An easy to read 4-page document of the main points to consider. Easy to print and keep in your medical file.
Children living with congenital/childhood onset Myotonic Dystrophy: Full document.
Children living with congenital/childhood onset Myotonic Dystrophy: 4-page Quick Reference Guide. An easy to read 4-page document of the main points to consider. Easy to print and keep in your medical file.
Care guide for adults living with childhood onset Myotonic Dystrophy (and their caregivers).
